ACOR is a unique initiative to improve the cardiovascular health of paediatric and adolescent and young adult cancer survivors. The establishment of the registry and biobank will change the morbidity outcomes and ameliorate the burden of care on the health care system for paediatric and young adult patients with cardiovascular disease.
ACOR will address the following aims:
Aim 1: To expand Australia’s first national cardio-oncology registry and biobank for paediatric and young adult oncology patients.
Aim 2: To develop and implement national cardio-oncology guidelines and clinics, for the identification and management of cardiovascular disease in paediatric and adolescent/young adult cancer survivors.
Aim 3: To determine (a) the cost and (b) short-term cost-effectiveness of the registry and cardio-oncology clinics, from a government and/or societal perspectives
Enrolment into ACOR
- Paediatric or Adolescent and Young Adult patients (0-35 years of age) with a new cancer diagnosis AND exposure to anthracycline chemotherapy and or other cardiac toxic chemotherapy as part of treatment.
- Paediatric or Adolescent and Young Adult patient (0-35 years of age) treated for cancer within the preceding 5 years with a known anthracycline induced cardiomyopathy or cancer therapy related cardiovascular dysfunction
- Consenting to being included on the registry in longitudinal manner
- Have a legally acceptable representative capable of understanding the informed consent document and providing consent on the participants behalf (for those < 18 years of age)
- A prior diagnosis of congenital cardiac disease
- A prior diagnosis of Trisomy 21
- Unable to attend institute for assessments of cardiac function
- No legally acceptable representative capable of understanding the informed consent document and providing consent on the participants behalf (for those < 18 years of age)
- Patient in palliative care at time of consent